Resources for Researchers
The CIBMTR database contains data on outcomes of hematopoietic (blood and bone marrow) cell transplant (HCT) procedures.
The Primary Immunodeficiency (PI) Diseases Registry collects validated data on all PI diagnoses from patients who give Informed Consent. The de-identified data in the registry is freely disseminated to those with research questions about PI diseases.
TrialShare is a transformative approach to data-sharing that enables clinical trial transparency.
The USIDNET Cell Repository, part of the US Immunodeficiency Network, provides a resource of DNA and functional lymphoid cells obtained from patients with various primary immunodeficiency diseases.