Provide Comments on Managing and Sharing American Indian/Alaska Native Participant Data

As part of its commitment to building partnerships with American Indian/Alaska Native (AI/AN) communities, NIH seeks input on draft Supplemental Information to the NIH Policy for Data Management and Sharing (DMS Policy) to promote responsible management and sharing of AI/AN participant data under the DMS Policy.

The purpose of this supplemental information is to:

• Support researchers in submitting a Plan under the DMS Policy with appropriate data management and sharing, when conducting research with AI/AN populations
• Promote an understanding of Tribal sovereignty
• Recognize the historic harms to AI/AN Tribes in relation to data oversight and privacy
• Provide best practices to mitigate potential risks to AI/AN Tribes
• Facilitate respectful, sustained, and equitable partnerships between AI/AN Tribes, researchers, and the biomedical research enterprise

For complete details, see the January 25, 2022 Guide notice Request for Public Comments on DRAFT Supplemental Information to the NIH Policy for Data Management and Sharing: Responsible Management and Sharing of American Indian/Alaska Native Participant Data.

Submit comments at Request for Comment: Responsible Management and Sharing of American Indian/Alaska Native Participant Data. NIH will accept responses through March 28, 2022.