US Immunodeficiency Network (USIDNET)

The United States Immunodeficiency Network, a NIH-funded research program of the Immune Deficiency Foundation, was established to advance scientific research in primary immunodeficiency (PI) diseases.

Main Areas of Focus

  • To assemble and maintain a registry of validated data from patients with PI diseases in order to provide a comprehensive picture of each disorder and act as a resource for clinical and laboratory research
  • To maintain an open and unrestricted central repository of rare materials, such as cell lines derived from samples of patients with PI diseases
  • To provide multifaceted mentoring programs to introduce new investigators into the field and stimulate interest and research in primary immunodeficiency diseases
  • To assist highly qualified junior faculty or committed senior fellows for travel grants to attend focused PI meetings
  • To interface with the Disease-specific Working Groups to foster novel research initiatives
  • To launch the new initiative for collecting data on infants with abnormal newborn screening
  • To engage the patient community through services such as the electronic personal health record for the primary immunodeficiency community
Content last reviewed on November 17, 2017