The United States Immunodeficiency Network, a NIH-funded research program of the Immune Deficiency Foundation, was established to advance scientific research in primary immunodeficiency (PI) diseases.
Main Areas of Focus
- To assemble and maintain a registry of validated data from patients with PI diseases in order to provide a comprehensive picture of each disorder and act as a resource for clinical and laboratory research
- To maintain an open and unrestricted central repository of rare materials, such as cell lines derived from samples of patients with PI diseases
- To provide multifaceted mentoring programs to introduce new investigators into the field and stimulate interest and research in primary immunodeficiency diseases
- To assist highly qualified junior faculty or committed senior fellows for travel grants to attend focused PI meetings
- To interface with the Disease-specific Working Groups to foster novel research initiatives
- To launch the new initiative for collecting data on infants with abnormal newborn screening
- To engage the patient community through services such as the electronic personal health record for the primary immunodeficiency community
Read more about this network: US Immunodeficiency Network (USIDNET)
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