Help End HIV - Red Ribbon Registry

Credit: NIAID

HIV remains a major health issue globally and within the United States. Recent audience research found that many Americans are not aware that HIV is still a health issue in the U.S., are unsure if they might be vulnerable to exposure, and do not know if there is a cure.

The "Help End HIV" educational campaign is paired with the launch of the Red Ribbon Registry, a unique, consumer-friendly volunteer database designed to match people who are interested in supporting HIV vaccine research with HIV clinical trials in their communities.

By volunteering for the registry, you will partner with researchers and help advance science against one of its greatest challenges. The registry allows researchers to quickly find people who might be a good fit for a study based on age, location, health factors and other criteria. The registry is made possible through grant support from the National Institutes of Health (NIH).

What Does the Signing Up for the Registry Involve?

To join the registry first complete the online health survey. Then researchers at a study clinic in your area will be able to contact you when they have a study that may be a good fit for you. You might be contacted immediately, in a few months, or even a year. Once you are contacted, you can get all your questions answered before deciding whether to participate.

Who Can Participate?

You must be HIV negative

We enroll people who are HIV negative because we are working toward prevention. We want to keep people HIV negative. 

You can be unlikely or likely to be exposed to HIV 

We need all kinds of people for our studies; whether or not you are likely to be exposed to HIV, there are studies seeking people like you.

You must be 18 years or older

You must be at least 18 years old to participate. Most current studies enroll people up to about age 50.

You will need to commute to one of the research sites

Volunteers will need to come to a study clinic during the study period (usually 12 to 24 months). The number of visits and timing will vary from study to study.

Where Are the Studies Taking Place?

See a list of study locations.

How Many Visits Will You Need to Make?

The number of visits and timing will vary from study to study.

What Are the Steps To Participate?

To join the registry first complete the online health survey. Then researchers at a study clinic in your area will be able to contact you when they have a study that may be a good fit for you. 

Participating in Research

Watch a series of short informational videos about participating in clinical trials. These videos are intended to help potential participants understand how research works, what questions they should consider asking, and things to think about when deciding whether or not to participate in a study.

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