Study of Clinical Features and Genetics of Hyperimmunoglobulin E Recurrent Infection

The pathogenesis of this disease and long-term natural history is being investigated. Therefore, we seek to enroll patients and families with a confirmed or suspected diagnosis of HIES syndrome for extensive phenotypic and genotypic study as well as disease management.

Visit ClinicalTrials.gov for details.

Contact Information

Christine J Lafeer, R.N., (301) 761-6902
clafeer@niaid.nih.gov

Alexandra Freeman, M.D., (301) 594-9045
freemaal@mail.nih.gov

Participating in Research

Watch a series of short informational videos about participating in clinical trials. These videos are intended to help potential participants understand how research works, what questions they should consider asking, and things to think about when deciding whether or not to participate in a study.

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