Data Policy and Guidance

Data Sharing Policies

Rapid and unrestricted sharing of data and resources is essential for advancing research on human health and infectious diseases. The utility of data and resources to the scientific community is largely dependent on how quickly these data are deposited into the public databases, and whether the data are easy to find, accessible, and can be reused by others. The Office of Data Science and Emerging Technologies (ODSET) works with all stakeholders at NIAID and NIH to implement data sharing policies by NIH and others to make it as easy as possible to share data while safeguarding privacy of research participants and patients.

To support data management and sharing by NIAID researchers, NIAID complies with all NIH data sharing policies, including the Genomic Data Sharing Policy (GDS) and, as of January 25, 2023, the NIH Data Management and Sharing Policy (DMSP). Additional details on NIH data sharing policies are available on the NIH Scientific Data Sharing website.

Past data sharing guidelines specific to NIAID are available under Data Management and Sharing Guidelines.

Which Policies Apply to My Research?

NIH Scientific Data Sharing offers a tool to assist researchers in determining which NIH data sharing policy applies to their research and details on NIH data sharing policies beyond DMSP and GDS.

Genomic Program Administrator (GPA)

The NIAID Genomic Program Administrators (GPAs) assist investigators with study registration and data submission to controlled-access repositories, such as the database of Genotypes and Phenotypes (dbGaP), and serve as experts on the Genomic Data Sharing (GDS) policy for NIAID. Divisional GPAs provide support to investigators funded by or within the NIAID Divisions, with assistance from the overall NIAID GPA in ODSET. Contact the NIAID GPAs at

Data Access Committee (DAC) 

The NIAID Data Access Committee (DAC) provides guidance and oversight of controlled-access data housed within NIH designated repositories, including the database of Genotypes and Phenotypes (dbGaP) and AccessClinicalData@NIAID.

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